MDS is a bone marrow failure disorder

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Low Platelets/Bruise very easily

HomeForumsPatient Message BoardLow Platelets/Bruise very easily

This topic contains 2 replies, has 2 voices, and was last updated by  mdsfound 3 weeks ago.

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  • #33357

    Timothy Todaro
    Participant

    I am a 54 year old male. My last visit to my GP my platelets were 133 and white blood cells were 3.1. I have a past history of Prostate Cancer which was removed 3 years ago. My GP has recommended that I see an oncologist to possibly do a bone marrow test and aspiration. He is stumped as to my easy bleeding and bruising, I am not on any blood thinners. My Mother passed away a few years ago and on her death certificate was listed MDS. The internet is so full of all info that my head is spinning. From what I read, it is rare for MDS to be inherited so don’t know if possible or not. Is my GP over reacting by requesting I go for the bone marrow/aspiration tests or is he in line with what should be done. He basically told me he did not know why I was bruising so easily, low platelets etc. so wanted to find out for himself along with me understanding the reasons for my issues.

    Does anyone out there know or can shed some light on if I should do these tests and if there is a real possibility of me having MDS.

    Thanks,
    Tim Todaro
    Saint Augustine Florida

    #33358

    Timothy Todaro
    Participant

    **Adding to the post I previously made…..**
    In resolving my Prostate Cancer, my Prostate was removed via Radical Prostatectomy. In addition, I had 8 weeks, 5 days a week Radiation due to the Cancer in the bladder neck. I am listing this information due to other postings referring to Radiation as a possible cause for MDS, (secondary). Any help/advise would be greatly appreciated. Should I go through with the bone marrow and aspiration tests?
    Thanks,
    Tim Todaro
    Saint Augustine Florida

    #33359

    mdsfound
    Moderator

    Dear Timothy, There are occasional familial cases of MDS, however, these are exceptionally rare. The genetics of MDS are complex, and the influence of inborn and inherited changes is either subtle or non-existent. In cases where there is an established history of MDS in the family, I always let other family members know that they should have annual bloodwork done and to watch their counts as an indicator. If your counts are abnormal, I would then make an appointment to see a hematologist. The Mayo Clinic in Jacksonville is not too far from St. Augustine so I would recommend that you go there. Following is a link to our Centers of Excellence worldwide http://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact us.

    • This reply was modified 3 weeks ago by  mdsfound.
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