Low risk MDS

[buddy west]

Has anyone been to UVA Charlottesville. Dr Keng?

[Robin Smith]

Hello Buddy. I’ve been going to UVA for a little over two years now. I see Dr. Firas El Chaer who I believe is in the same department as Dr. Keng. I’ve not seen Dr. Keng, however I’ve had an extremely good experience at the UVA cancer center and certainly with Dr. El Chaer. So far, everyone there has been very caring and professional. Sending you my very best.. take good care, Robin

[buddy west]

Thank you Robin, do you get yearly BNB at UVA? You are on wait and see also?

[Robin Smith]

I’ve had two BMB so far (diagnosed in 2019). One at St. Mary’s in Richmond and one at UVA ordered by Dr. Michael Williams, the doctor I initially saw there. At my last visit with Dr. El Chaer, in early January, he didn’t mention setting up a BMB so neither did I 🙂 My next appt. is scheduled for early April so I’m thinking he’ll say something about it then, if he intents a BMB to become an annual test. I’ve not been on watch and wait. My hemoglobin was low at the time I was diagnosed so I began 20 units of Procrit on a weekly basis. Grateful I’ve had a good response with it for a little over two years now. I’m also low risk, btw. Happy to see you’re on watch and wait and hope that status remains for a good long time.

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