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MDS Meds

This topic has 3 replies, 3 voices, and was last updated 9 years ago by Jackie.

Viewing 4 posts - 1 through 4 (of 4 total)

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February 27, 2015 at 6:59 pm #26548

coaster22
Participant

I’m MDS RARS. Why is my Aranesp failing to help me? Anyone have experience with this?

April 4, 2015 at 8:46 pm #26701

Jackie
Participant

How long have you been getting Aranesp shots? I just had my 7th one. They seem to help some, although there are no miracles. I have slightly more energy within several days of receiving my shot. I am told by my Oncologist that when they stop being effective, they can add something to the shot to help raise my Hemoglobin level.

What does you hemoglobin usually read?

April 15, 2015 at 1:11 am #26727

simpsonshe
Participant

I have RARS MDS also. I have been taking aranesp for two years. In Aug of 2014my dr at the mayo clinic recommended I take a shot of neupogen along with my aranesp shot. It seems to help give me more energy. I take my shots every 2weeks. They seem to keem my hemo in the 10’s. It is not always a given though. I took my shots yesterday and was very tired today. I took a 4 hr nap.

April 16, 2015 at 2:25 pm #26736

Jackie
Participant

Which Mayo Clinic do you go to? The one in Minnesota or the one in Jacksonville, FL? I am in Florida and have gone to Shands in Gainesville, FL. My regular oncologist is in Thomasville, GA.
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