Hi Lucy,
My mom had Mylotarg combined with another chemo for her 2nd induction treatment. Mylotarg has a long list of possible side effects so I was very nervous about her receiving it. At the time there was another Leukemia message board active and a few people had taken Mylotarg and didn’t have bad side effects so that helped. I stayed with her the day she received mylotarg and I left the hospital around 10:30 PM.. I thought you could have some reactions up to about 8 hours after receiving mylotarg.. I was concerned about her getting severe shakes and not calling the nurse… You can get severe shakes/cold similar to reaction from receiving platelets. My mom did get that reaction and I ran out and got the nurse and shakes stopped once she received demerol and benadryl… At the slightest tremble I ran out because the severe shakes/cold comes on very quickly. I finally left and she told me she had one more reaction a few hours later in the middle of the night. I wanted to stay overnight with her just in case and I was really mad at myself that I left her. ( I think you can have a reaction up to 24 hours, less likely the more time that goes by) She kept insisting that I leave.. It was worth it, because it did put my mom into remission. It did take longer for my mom’s counts to come up but it was her 2nd induction within a short period of time. It sounds like your mom handled the chemo well . My heart goes out to you with her struggle to keep her platelets up.. I will be praying for you and your mom.. Pat
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