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  • #46321
    Pat Mathews
    Participant

    Would it be helpful to take iron and/or B12 supplements over the counter for mild MDS? Also, does stress effect MDS? It’s Ben a bad month and I also have Crohn’s and that was flarry up during that time,
    Thanks
    Pat Mathews
    patmat@sbcglobal.net

    #46340
    mdsfound
    Moderator

    The need for vitamins and iron differs from person to person with MDS. MDS patients who have chronic anemia and require frequent blood transfusions often suffer from iron overload. In these cases, taking extra sources of iron by mouth can be harmful so in this case a multivitamin formulated without iron can be taken if you so wish. This may sound strange since most people equate anemia with iron deficiency, but in MDS, it isn’t the iron that’s missing, it’s the red blood cells themselves, so taking iron supplements doesn’t help and may have a negative effect. It is best to consult with your treating hematologist before taking any iron or vitamin supplements.

    #46348
    Pat Mathews
    Participant

    What about B-12

    #46350
    mdsfound
    Moderator

    Hi Pat, It’s important to talk to your doctor about any vitamins or supplements, any drugs you are considering.

    #46484
    little birdie
    Participant

    Talk to your doc.. I take B12 1000 mcg and folic acid 2mg but my hematologist prescribed them.. they helped.

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