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too many platelets???

This topic has 7 replies, 1 voice, and was last updated 19 years, 2 months ago by geebeebee.

Viewing 8 posts - 1 through 8 (of 8 total)

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February 9, 2005 at 5:38 pm #4040

shirlsgirl
Member

Hi everyone,

I didn’t think this would happen. Last week my mom’s cbc showed platelets at 168,000. This week they are over 500,000! I hope they don’t keep going up! Also, her WBC’s have come down from 19 to just over 11. (mono.s still high though, was 0.32 and are now at 0.62. She is now tapering off of the prednisone…. strange.

Well, she met with another hemo doc. yesterday, Dr. Leber a very nice man. He said her CMML is an ‘interesting’ case because it is similar to CML with a particular chromosomal abnormality. So, he’s ready to prescribe Gleevec for her if her drug plan can cover it. The drug will cost about 45,000 dollars a year!!! Please cross your fingers….my mom’s calling today…I sure hope it is covered and I sure hope it works.

Jody

February 9, 2005 at 5:59 pm #4041

Jack_dup1
Member

Hi Jody,
In regards to the Gleevac, it could be a good thing. I was on a Gleevac trial, but I do not have that chromosone abnormality, only about 2% of CMML patients do. I will keep you both in my thoughts and prayers.
Jack

February 9, 2005 at 6:26 pm #4042

shirlsgirl
Member

Thank you Jack How are you? I think of you often. Hope you are well.

It’s a go, mom spoke with her drug company..I wish she didn’t have to wait 2 weeks…it would be nice to get started right away.

Jody

February 9, 2005 at 6:41 pm #4043

sarah
Member

Jody, glad its a go. Hope it works for her.

February 9, 2005 at 7:59 pm #4044

Suzanne
Member

Jody, It’s a go and it’s covered and it sounds like with her chromo change she has a better chance then many that it will work! Here’s hoping!!

February 11, 2005 at 7:04 am #4045

Andrea
Member

Hey Jody

What good news. I don’t know about my moms chromosomes, I’ll have to ask her Hematologist. I did ask him about Gleevac when she was first diagnosed and he said that it wasn’t for this type of MDS. I’ll have to inquire about that too!!

Hope the treatment starts soon and wish it success!

Andrea

February 11, 2005 at 11:01 pm #4046

alexandra7
Participant

YEAHHH!!! If it’s a go it’s one point for you in this battle . Good for your mom !!! Hope to hear even better news and it works well(in fact think positive —IT WILL WORK )Alexa

February 11, 2005 at 11:25 pm #4047

geebeebee
Member

Great news, Jody! Best of luck for positive results.

Greg
Author

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