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Vidaza Energy level

This topic has 7 replies, 1 voice, and was last updated 17 years, 8 months ago by LorettaV.

Viewing 8 posts - 1 through 8 (of 8 total)

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August 18, 2006 at 2:07 am #14495

Judy Vance
Member

I was diagnosed with MDS in July, 2006. After 3 seperate medical opinions, I started Vidaza August 7 through August 13, 2006 with 3 daily injections. My blood counds have overwhelmingly improvied so that I should be able to kick my heels and dance. However, since the injections, I have had NO energy — sleep most of the time, Do any of you know of a source of energy to get me the “quality of life” promised me on vidaza??

August 18, 2006 at 2:30 am #14496

Russ
Member

Hi Judy,
3 daily injections sounds like a lot but the dose of each is critical. Be happy your counts have improved. It took me at least a week to get over Vidaza and you may need a little more time after the injections stop.

August 18, 2006 at 6:19 am #14497

KWJ
Member

Energy levels are touch to maintain. You are fighting MDS plus chemo. My dad sleeps a lot. Sometimes 18 hours a day. It is great that your counts are responding.

Try to go easy on yourself.

August 18, 2006 at 12:55 pm #14498

Terri
Member

It takes Bob about a week to bounce back after his week of Vidaza.

August 18, 2006 at 4:41 pm #14499

SusanJ
Member

Do all of you taking Vidaza seem to think that the tiredness is worth all the trouble? Does the good of Vidaza outweigh the bad?

Susan

August 21, 2006 at 3:48 pm #14500

gemloyear
Member

Hi all, I don’t think that vidaza alone is the cause of the tiredness. My husband is not on any chemo but he is continuously tired. It seems that is the nature of the disease. As the disease progesses it seems that he sleeps more hours and has less and less energy, even though he is on a good diet and uses protein shakes plus vit. and many supplements. I believe that getting out in the sun and fresh air and as much exercise as tolerated helps with the energy level.
take care, Ellie

August 21, 2006 at 6:24 pm #14501

franm
Member

My husband was diog. with MDS in July of 05 and he just went through 3 session of Vidaza. He will be starting his 4 session on the 31st of this month. After his 3rd wound he still felt real tired for at least a week after he stopped. He is still tired, sleeps a lot and if I go shopping he just sits in a chair and waits for me. He eats pretty good and that is good.

So, I think the MDS has everything to do with you being so tired and not getting sleep at night.

Fran

August 28, 2006 at 3:21 am #14502

LorettaV
Member

When your counts are low, you are going to be tired. Is you hemoglobin below 10 or 11. When my hg. was down to 9 or 8 I was more fatigued. at 7 or 6 I was a zombie. Vidaza is “killing the bad cells” allowing the good stem cells to grow, and make your blood cells that keep you going. While you are taking the Vidaza shots, you will probably feel more tired. After the 7 days of shots is over, then my energy level comes up. After 3 months of Vidaza, my counts recovered to normal giving me more energy. But I still try to remember to not plan too much during the 7 days of shots. I hope it works for you.
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