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Yearly BMB. Are they needed for low risk MDS

Tagged: low risk mds

This topic has 3 replies, 4 voices, and was last updated 2 years, 2 months ago by Michael.

Viewing 4 posts - 1 through 4 (of 4 total)

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February 3, 2022 at 9:49 am #57260

buddy west
Participant

Recently dia low risk MDS, hem 11, wait and see currently, 73 years old, should I start some type of treatment?

February 3, 2022 at 5:12 pm #57273

Jimmy Greenhut
Participant

Buddy, all based on lab work. Your Dr is aware. Be pleased that your #’s are good. I was on watch & wait for a year. Now transfusion dependent still after trying 4 drugs in the past 2 years. I’m low risk too.

February 3, 2022 at 9:22 pm #57274

Kathie Wolf
Participant

Hubby was diagnosed in 2017 at age 70. Watch and wait for a year. When his Hemoglobin hit 8 started Procrit. Dramatic response, too good, as risk of deep vein clots goes up when over 10. So stopped. Restarted, developed a superficial clot so started Vidaza in August of 2019. Completed one year with all normal labs. Stopped Vidaza and has been in remission since. All labs continue to stay in normal range. Every persons response to this disease is different. So, for now, enjoy the watch and wait but know there are lots of “tricks in the bag” when you start needing them. Hubby is low risk too. Hasn’t had a BMB since 2019 when he started chemo.

February 4, 2022 at 4:46 pm #57275

Michael
Participant

I am low risk and diagnosed in June 2016. I have monthly blood work at local hematologist which thankfully remains stable. I have an annual BMB at a Ctr. Of Excellence and my blast count remains normal. My hgb is typically between 11 and 12.5, my wbc is always low 1.6ish.

My annual BMB is when I see the Dr. who will guide my treatment when it becomes necessary. I would not miss that trip for anything.

Best Wishes.
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