MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: What are the most important questions to ask my hematologist #15952

    First let me say how thankful I am to have found this site. My mother was diagnosed the day before Thanksgiving. She had been in the hospital for a week and we were both quite weary. The questions didn’t come until later and with your help I’ll be sure to ask some good ones. She’s 67 but that’s the only number I know. Her primary care doctor is helping us find a specialist in her insurance group and apparently the hospital kept the lab reports which now I realize I should’ve been given. I’m confused about masks and just how careful she has to be. She doesn’t want to take unnecessary risks but wants to continue living a full life. She is living with me as I’m concerned about mold exposure in her home (bad roof) and she’s usually here for the holidays anyway.

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