MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 16 through 20 (of 20 total)
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  • in reply to: My sister #12614
    QQ
    Member

    Dear Patti,

    Don’t worry. Please only write when you have other things settled down. I believe that it is a long-time battle with the disease.

    Internet use is quite common in China now. I told this forum to my elder sister (she is on the plane to China now) and she will check it very often in China.

    I am truely grateful to all of you for all the help I got form this forum.

    in reply to: My sister #12612
    QQ
    Member

    Dear Neil,

    I tried your method and it still doesn’t work. Basically I cannot read the post contents in the middle of page 29. Thanks anyway.

    in reply to: My sister #12610
    QQ
    Member

    Dear Patti,

    Thank you so much!!! I actually was waiting for your reply all day. Thank you again! I will call my brother-in-law immediately of all the tips I got so far. Yes, if you can, please send me a list of the supplements your MIL is taking.

    I found this website incidentally last night and already feel the warmth of all the friends here. I will read this forum every day from now and share the experiance here with my sister and family.

    I have one small question: I started to read all posts in this forum today. But it looks like I can only read the posts back in page 29 or 30, but could not read posts earlier than that. Do you know how to solve this problem? Thanks!

    in reply to: My sister #12608
    QQ
    Member

    Thank you, Patti. I just learnt that my sister’s IPSS score is 1.1 and what the doctor suggests is stem cell transplant rather than a BMT. Sorry for the confusion.

    in reply to: My sister #12606
    QQ
    Member

    Neil, Bob and Terri,

    Thank you so much. My sister was diagnosed as RAEB (or RAEB-T). She has 17% blast cells now. No abnormal Chrom. We will know whether there is a perfect match for her proabably by the end of next week.
    She is optimistic so far. We dare not to talk about any survival stuff with her. I will let you know more later.

Viewing 5 posts - 16 through 20 (of 20 total)

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