[Stephanie]

Hello Mark, I had the ATG treatment in Sept 01 & though I had a terrible allergic reaction & had to discountinue the treatment. With a fever of 106+, huge hives, + all the other vomiting and such, it was terrible. I came very close to loosing my life. I believe in the instances the Drs will use ATG for MDS patients is when there is a hypoplastic marrow present. It seems that this is always the common diagnosis present. They are still looking for me a suitable donor, however, I have no match available-anywhere! So, transfusions and blood sustaining meds like Nuelasta (for the white counts) Procrit (for red counts) They give me steriods for my platlets. (opinion only) I think you should give the ATG some more time, if you just received it 3 months ago. It can takeup to a year; I’ve read from others over the years. My step-mother was just diagnosed with MDS a year and a half ago, went into remission, came out of remission and is now undergoing a stem cell tranplant. So please keep Glenda in your prayers! I was diagnosed in 7-2000. She & my dad have been married for 25 years or so. I wonder what we could have in common that we could both end up with this dreaded RARE disease??? Very Odd? Perhaps many trips over to Old Mexico, they live near the Texas/Mexico border. The horrible exhaust over there.

[Stephanie]

My step mother of 25+ years was just diagnosed. I never smoked but second hand from all family members (benzene) or we have both been to old Mexico a bunch.
Simular with your folks w/o being blood related. Enviromental? She is 60ish and I was 34 and diagnosed in 2000? Now they are saying they think I may have Lupus or something simular due to reoccuring meningitis. God blesses me with a new day everyday, after getting 3-5 to live! PLEASE pray for my upcoming MD Anderson Blood and Platelet Drive 12-10-05. We need blood due to the stress of extra patients and weeks of donations lost from hurricanes Katrina and Rita evacuations! Bless all who deals with this debilitating disease!

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