MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: MDS – The unanswerable areas. #35867
    bchgal
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    I am a 68 year old female who has been “low on iron” since my late 20’s. Seven years ago I went to the ER with heart attack symptoms, found my Hgb a 7.3. After my first transfusion I could breathe again. Hematologist put me on series on iron sucrose infusiions with a couple of units of blood transfusions in 2016, and 2017. Had a BMB in Jan 2017 and diagnosed with MDS RA, started me on procrit varying dosages depending on Hgb and HCT with blood draws every two weeks. In January 2018 mh Hgb fell to 6.5, I had two blood transfusions and a series of iron sucrose infusions through Jan and Feb.
    I am going in for my second BMB tomorrow to see the progress of this disease. Health provider does not want Hgb to go over 10 due to more likely for heart attack / stroke with the procrit. I am not active and gaining weight due to months and years of inactivity and no will power. Today, I can tell I Hgb is at around 9, as I can walk to mail box without chest pain and shortness of breath. I am aware there are many sub MDS, however, I have found no one commenting on iron sucrose infusions for anemia, anyone out there?

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