[bkwits22]

Hello Karen,

I have strong empathy for what you are going through right now. My husband, Joe, was in the hospital for two months. He had kidney failure (requiring dialysis), infections, an intestinal blockage requiring emergency surgery,and finally pneumonia. He was able to make most decisions for himself, but he still needed an advocate. The biggest problem was that he had too many doctors giving orders.

I can also relate to the family problems that you are experiencing. My thoughts and prayers are going out to you. Barbara

[bkwits22]

Thank all of you for your kind words. It really helps.
Barbara

[bkwits22]

Hi Jody,

I don’t know if he had urine cultures done. Would the urologist order those? He has blood in his urine for at least 2 weeks. The only doctor who seems really concerned about that is his hematologist. I am not happy with the urologist. He didn’t see Joe prior to Joe’s release from the hospital. Joe will be seeing the urologist in his office soon. Thanks for your support.
Barb

[bkwits22]

Hi everyone,

Joe was transferred to rehab today. He is starting to get up more. But I would feel better if he were still in the hospital. His kidneys are functioning, but he is bleeding from his bladder. His hgb went down to 7.0 and hematocrit was 21. He had rbc transfusions yesterday and the hgb was above 8 this morning. The good news is that he is determined to get better.
By the way, he was getting 155 mg per day (5 days) of Vidaza before his hospitalization.Barb

[bkwits22]

Thank all of you for your kind words and prayers. I haven’t quite learned to post on this forum, so I my previous reply did not get posted. Joe is doing a little better. He is still in the hospital but will be released soon. His platelets are 39k today. They were at 6 or 7k last week. He is weak from being in bed so long and low hgb (about 8.5). Thankfully he has so far regained kidney function. It’s wait and see.
Barb

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