MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: How many units of blood? #54168
    BRIAN BRIAN
    Participant

    I get 2 units every week — this has been going on for nearly 80 weeks.

    My HgL has ranged from 2.8 to 7.1 over that period — averaging 5.675.

    Last week they put me in the hospital because I had a slight fever . . .

    I went into the hospital with HgL of 4.5 — and immediately got 2 units of blood. Six hours after the transfusion, HgL was 5.0.

    They gave me another unit the next morning and HgL went up to 5.4.

    It wasn’t till 2-days later that I got another blood draw in my docs office and threw a 6.3.

    The point per unit rule isn’t real. Your results will vary and nobody has given me a reason why that makes any sense.

    As far as how many units per patient — I always figured that was determined by how far away from your target level you are — and I’ve never met anyone who got 3 or more units in a week’s time unles it was a dire situation.

    Hope that helps.

    BFey

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