[Dale Frank]

Thanks for feedback. My port is installed under the skin to reduce infection rate. Flushing with Heparin avoids clotting in the catheter. Nurses adjust the mix and low rate to optimize Vidaza efficacy. I’ll report after first round with port.

Be well.

[Dale Frank]

Misty, I have had 3 rounds of Vidaza. Nausea is manageable by spacing meals and with some ginger fruit chews my doc gave me. I have had some blistering at injection sites but Kathy and others have posted suggestions. Other than this, I have felt as well during the 5 day injection period as before and after the 5 day period.

Pat Lawson, thank you for sharing your husband’s experience. His disease sounds similar to mine. I will look into Veneteclax trials.

[Dale Frank]

Joey,

Great news for your dad. Fingers crossed here. How old is your dad? I’m 71 with low WBC, RBC and Platelets and considering bone marrow transplant, but scared of the ordeal. Thx.

Dale

[Dale Frank]

Hi. I have had 3 cycles of Vidaza injections in tummy and had bad blistering during/after cycles 2 and 3. Dangerous since my WBC count is 1.0. I had a port installed in my chest and will start my next Vidaza cycle by injection through the port.

[Author]

Posts