frank's Replies | MDS Foundation

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 3 posts - 121 through 123 (of 123 total)

← 1 2 3 … 7 8 9

Author

Posts
January 13, 2005 at 3:38 pm in reply to: Decision time! #3136

frank
Participant

i hope i can make the decision when i face to it. not easy for me to think it over for my twin girls…

i basically don’t have clue on which way is better, but from most people here, it seems BMT is not a bad direction for people like us.

you you have luck on this issue.

Frank

January 13, 2005 at 2:39 pm in reply to: Decision time! #3132

frank
Participant

Dave, i am facing the same problem as waht you have, but i have not went through the match game yet. from my hemo doctors(2 doctors) told me, i may go for it ASAP, but Doctors from Johns Hopkins Univ. gave me a new info on it, check the paper of on Blood, 15, July 2004, Volume 104, Number 2. the name of the paper is Decision Analysis For MDS, in the paper, it suggest delaying the BMT as your diease progress if you have a stable MDS(not say for transfusion depentable).
from my research for this issue, it seems that do the BMT if you are a transfusion patient(like me).

Hope it helps…

Frank

January 11, 2005 at 4:28 pm in reply to: How he feels……. #3082

frank
Participant

for me, 7.8 is not so bad, maybe just because i am young(41), my lowest point is 5.8, and i am easily get tired on that point, but i even don’t know at then, and i was working and still driving…
Author

Posts