[g-masews]

My husband hasn’t had a blood count since July although he is suppose to get it done every 4-6 wks. He says he doesn’t want to know. But I’ve learned (mostly from reading this forum) that things can be going on without his having symptoms and I’ve finally gotten him to understand that. He had very low blasts at his BMB, but I know that can change, also, in a hurry. His best line is red cells so he is not tx dep. at this time and fatigue is not an issue (course we live in Denver, so we’re used to not breathing much oxygen -ha!) His white count is his lowest but he’s never been too prone to colds or flus and he tends to scratches, cuts, etc. right away. Dr. hasn’t suggested anything at all, but might if he saw the counts changing much, which is why I’m trying to push him to get his BCB’s done regularly. I know he’s into this a short time and doesn’t want to dwell on it, so my main purpose here is to air my concerns on you guys rather than take my frustration out on him. Hope you don’t mind. Thanks

[g-masews]

I think my fear is that things will change very quickly, as you say. The dr. said he is a timebomb waiting to go off. The trisomy 8, which is one of the abnormalities, won’t stay idle for long is his phrase. But I also read all the posts from so many of you that have long outlived your pronosis’. Lindajo, yours is one that I’ve noticed, as your dx was so long ago. If you don’t mind my asking, how do you get an IPSS of 2 with no abnormal chromosomes? My husband’s score is also about a 2 and the prognosis I keep reading is really scary. I try to throw all that out of my head, as so many of you have said to do. And yes, we do have full disability insurance, and excellent coverage all round. Thank God for that.

[Author]

Posts