So similar! Last year BMB confirmed MDS Trilineage Trisomy 8, ASXL1, Etnk1 and macrocytic anemia. I was low RBC, borderline to low HMG,HCT, Plt. After BMB 3 weeks ago my doctor said I didn’t have MDS because no dysplasia, only normal cells. Said I do have hypercelluar marrow 70%, Trisomy 8 and macrocytic cells and onky low RBC. Shocked, I asked if I actually don’t have cancer.. Like you it was ‘not exactly’ but his opinion is that I have MPN NOS but numbers don’t support that either. So no clear diagnosis except I have every classic symptom and he ‘thinks’ i will progress and is sure my symptoms are from. Myeloid disorder. He had to leave before I coukd formulate questions and I am waiting days now, for a return call from his team to clarify. I do know this is a complicated and complex disease but like you, if I don’t have MDS, what do I have and what is my trajectory and future. I’m so confused and lost. Not having MDS is good but what happened?? Hopefully we’ll get answers. Good luck to you on this complicated journey.
