Hi Deborah
I am new to this and just read your post, up above. My elderly mother (she is 87) was recently diagnosed with MDS Refractory Anemia with excess blasts sub type 1. She is on the same protocol as you, Vidaza 7 days on 21 days off. She is just on her 6th day of the first rounds of shots. She is very down, and so very tired. She has absolutely no energy and it is difficult to get her out of the house for the shots, and up the stairs to her house. Just wondering if you have taken anything for the fatigue? Doctor has recommended American Ginseng, that is it! What about b12 shots? I have no idea how this is going to play out for her. It is super scary for my mom, my dad, myself, the whole family. We really don’t know what to expect. Not sure the doctor is very forthcoming about longevity statistics, etc. Any advice you can give me so that I can help my mom cope better, would be much appreciated. Thank you so much.
Jane
