MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Is Vidaza worth it? #48817
    John Moser
    Participant

    Misty:
    I just finished my 19th cycle of Vidiza. My first 12 cycles were on a 28 day schedule. I had low wbc that didn’t improve very much, treatment was postponed two times due to the counts. I was told that either the Vidiza had stopped working or I progressed to Acute Myeloid Leukemia by a NP. A later BMB showed my counts improving with Blasts at 2%. My treatment cycle was changed to a 42 day cycle in October 2018 and my counts have remained in acceptable range. I have had few Side effects, mainly fatigue and real bad constipation, and injection site soreness.
    I was told that I would not be a good candidate for stem cell transplantation due to my age(72 at the time ) so Vididza was one of my two options. So for me Vidiza has been well worth it.

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