[jnos]

Jodi, good luck to your Mom and your whole family. I too live in Michigan, but in the Southwest corner of the state. I was diagnosed with MDS last May and continue to "watch and wait". My daughter is a great support to me, so I know how much your Mom thanks you for being there for her. Best wishes.

[jnos]

Mags, Thanks for your reply. It’s my sister-in-law that wants me to stop taking the Fosomax. She’s thinking it goes right to my bones, therefore bone marrow and that’s what’s caused the MDS. I wish it were that simple.

Janet

[jnos]

Hello to everyone..I am new to this forum and unfortunately new to MDS. I still can’t believe this. I posted a thread yesterday titled "I have what" that tells a little of my story. Bottom line is that I’m 60 years old, with a full time job and am caregiver to my 87 yr old Mom who lives next door to me. I found out in May that I have MDS (RARS). I have had a second opinion at Northewestern Memorial Hospital in Chicago and was told the median survival rate for me is 10 years. A few questions: has anyone taken Fosomax for osteoporosis? I was taking it, but was told by a family member to stop taking it…does it cause MDS? She made me feel so guilty about still being on it. Both doctors have told me to keep taking it. Also, should I go further for opinions? Mayo Clinic, MD Anderson in Houston? I have a sister who would be willing to see if she was a match for a BMT, but I am not yet sick enough. Isn’t that sad that we have to get sicker to try to get better. I realize that quality of life is paramount, but I just want this to go away!

Thanks for listening.
Janet

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