[Elisabeth Paes]

Hello, Charlie. I’m 64 y.o. and I was dx with MDS with refractory anemia type since 2007, though I have anemia since my childhood. I also have HH, but heterozygote. Anyway, I’ve been with high iron levels since menopause, 20 years ago. Ferritin between 500 to 900, until 3 years ago, when I was dx with Adrenal Insufficiency, probably as a result of many years with iron overload.By then, Ferritin was above 1650, hemoglobin went down to 7.9. I needed a few transfusions (3 in total) and cortisone since 2015. I was treated with Functional Medicine, so lots of supplements, probiotics, enzymes, etc. Bedridden for about 2 years, I finally got some strenghts back and learned how to live with all the symptomes. Two years ago I started with LDN 3.0 mg, and I think this medicine stabilized the MDS and improved all the other symptomes I have. Now I moved out to the US (I’m from Brazil) and I’m struggling to find a good integrative doctor to keep my treatment. My experience so far hasn’t been positive as doctors tend to see you as a bone marrow or a liver or a heart, never as a whole person that needs help.It’s so mechanical! They want to give you all kind of drugs that causes you side effects, bringing you new symptomes and more and more drugs. I do a lot of research about health alternatives, so I can discuss with my doctors what is the best for me. A good diet is also very important, but usually doctors don’t know about that.Take care, Charlie.

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