Dear Crystal,
My sister was diagnosed with high risk MDS in August of 2018 and it converted to AML in December of 2020. Two weeks before the holidays she asked to stop any measures and go on hospice care. I stayed with her until she passed on Christmas day. Prior to the last 7 days she appeared confused and her speech did not always make sense. After that she stopped speaking, eating and refused liquid. Hospice has everything available to make your loved one comfortable and they will assure you regarding dosages as you work through it day by day. I didn’t hesitate to play soft music and talk softly to her – I think it helps. I’m so sorry for your pain, but know that being there is a great gift and that you are just doing the best you can. Bless you.
Linda
