[salome]

Hi, new here. My husband (age 59 now) was diagnosed after having a severe infection of unknown origin in 2008 which had him hospitalized for 5 days. It was then he was told he had Diabetes Type II (AIC was 17) and low WBC, RBC, Platelets. he was pretty much at deaths door, with rigors and fever. He thought he was dying.

After he was discharged, he was on new blood work for his Diabetes every 3 months. His WBC and RBC were often low, and his platelets were always around 60-90. I would ask about it, and the reply was always … “meh, some people have low platelets”. Fast forward to 2014, and I noticed he was looking very thin and pale. He is an active guy, with an active job, he plays hockey and we live on a 20 acre farm with horses and dogs.

I insisted on a Biopsy at this point, and it was discovered he had MDS RAEB-1. He now has bloodwork monthly, and his blood work fluctuates at the low end of normal and often dips slightly below. His platelets are between 45-90.

We are on watch & wait, but will be heading for a Myeloid Gene Panel test in June, as his WBC and RBC #’s have been falling a bit more than usual. We are curious to see what happens. Has anyone else had this test?

His brother is a 100% match for donation, but the doctor doesn’t feel like this is an option at this time, as he is doing so well.

We notice that his blood work gets really bad if he doesn’t have his diabetes controlled.

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