My mother was diagnosed with MDS about three years ago. I have thought about posting this info for a long time and am ashamed I waited so long.
On a checkup at Kaiser Panorama City it was found that she had almost no blood and she was subseqently diagnosed with MDS. The doctors told us she had maybe three months to live and to get her affairs in order. Over the next several weeks, she was given transfussions to keep her going. First it was once every ten days, then once a week, then twice a week. She was 83 years old. Due to the effects of the drugs she was on, she got mouth canker sore so bad she could barely swallow so she was admitted to the hospital. While there she was given intravenous anti viral drugs. Zovirex. She also had been on Procrit.
Her canker sores subsided and we went back to the routine of transfusions but after about three weeks her doctor said her blood levels were improving. After another month or so they were normal. Finally the doctor announced she was in total remission.
She remains clear of the disease to this day. I am sorry the details of this post are not more specific but my recollections are not that great.
I was a little shocked that the doctor didn’t make more of a deal over this and it has nagged at me to this day so I have made this post in hopes that it leads to a cure.
Doug