Dad started his Vidaza today

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• January 3, 2005 at 10:21 pm #2600
  Carrie

  Member

  7 days straight and then a few weeks off.

  Talked to him on Thursday and he’s in good spirits .

  January 4, 2005 at 12:52 am #2601
  shirlsgirl

  Member

  Glad your dad is in good spirits!! Good luck with the Vidaza. Jody

  January 4, 2005 at 1:09 am #2602
  Suzanne

  Member

  Carrie, wishing your Dad success with the vidaza. I do believe “good spirits” are beneficial. We are pulling for him! Suzanne

  January 4, 2005 at 1:14 am #2603
  Kathy G

  Member

  Carrie-
  My Dad started Vidaza today too. I am so praying this will be a success for him. His counts are dropping – his platelets are low and it has him so worried. We’ll have to stay in touch and see how they do. This is such an emotional rollercoaster.

  Kathy

  January 5, 2005 at 7:11 am #2604
  KATHY1

  Member

  Carrie and Kathy,

  Hoping to hear good news from you both about your dads. Keep us informed. Good luck.

  Kathy

  January 5, 2005 at 2:25 pm #2605
  Kathy G

  Member

  Carrie-
  How is your Dad doing? Mine seems to be tolerating it OK but it’s only been 2 doses. Hope he is doing well.

  Kathy

  January 6, 2005 at 1:05 am #2606
  Terri

  Member

  Carrie, My husband is on his second go around with the Vidaza, completed 6 months last April and it got his Blast down in the Marrow to Normal. His counts were pretty stable for 7 months. His Whites started rising and so did the blast. Doc did a BMB and started him back on the Vidaza, So far its been ok. Bobs counts are holding.
  One suggestion to all I would talk to your Doctor or a Nutritionist about Vitamins to Boost the Immune system during the treatment. OUr Hemotologist also has Bob on Levaquin an antibiotic.

  January 6, 2005 at 2:50 pm #2607
  Carrie

  Member

  I know my dad’s taking supplements but I’m not sure where from or what kind. I think he’s eating better, too. He’s never been very good at taking care of himself so he has to learn to. He’s up to over 300 lbs and he’s struggled with weight for a long time .

  He’s taking the Vidaza well except for a small reaction at the site. They’re keeping an eye on it but they think that they injected it in the muscle instead of the vein. They may change where they inject it. The last time I talked to my mother was Tuesday and I figure no new is good news so far.

  How long does it take after the last dose for the counts to intially go down? I know that’s where he has to be very vigilant.

  Thanks!
  Carrie

  January 6, 2005 at 3:32 pm #2608
  eve

  Member

  carrie

  the vidaza is injected into the muscle not the vein

  eve

  January 6, 2005 at 3:45 pm #2609
  Carrie

  Member

  eve,

  Okay, now I’m confused and my mom must be, too. I’ll call her today for clarification…

  Thanks for the info!

  Carrie

  January 6, 2005 at 5:07 pm #2610
  geebeebee

  Member

  Carrie and Kathy,

  Best of wishes and luck with the Vidaza for your Dads.

  Greg

  January 6, 2005 at 9:27 pm #2611
  Terri

  Member

  Actually the injections are what they call SUBQ, just below the skin not in to the muscle or vein.

  January 6, 2005 at 9:55 pm #2612
  eve

  Member

  terri is absolutely correct – definitely not into the vein

  eve

  January 6, 2005 at 10:17 pm #2613
  Carrie

  Member

  SubQ sounds more like what my mom meant. I think I filled in the blanks with what I thought I heard. So I guess they have to make sure they don’t put it into his muscle again but definitely not into his vein.

  That explains why they don’t use his port for the injection.

  January 7, 2005 at 4:25 am #2614
  Kathy G

  Member

  Thanks Greg – so far he is doing OK with Vidaza -I keep holding me breath. He’s got a bit of a cold so I’ve been worried it might get worse but he’s hanging in there.

  Thanks for all the positive thoughts.

  Kathy

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