Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

EPO Injections

Tagged: Epogen

This topic has 2 replies, 3 voices, and was last updated 5 years, 3 months ago by David Williams.

Viewing 3 posts - 1 through 3 (of 3 total)

Author

Posts
December 30, 2018 at 10:42 pm #44806

Ron Schurman
Participant

My wife was recently diagnosed with mds Dr wants to start epo injections in 2 weeks. Every 2 wk process. Anyone receiving injections now? What can we expect?

December 31, 2018 at 2:22 pm #44807

Owen Maguire
Participant

I was placed on Epotine-alpha in 2015 when my Hemoglobin took a dive. I have MDS Trilineage and was diagnosed in 2012. Up to that time I was on watch and wait. I am on “Eprex (Canada) 40,000 units which I self inject once a week. It has held the Hemoglobin up since that time but is still below accepted standards. Because of WBC falling in April 2015 I was placed on Vidaza and am presently in the middle of my 23 7/21 day cycle. There was a lot of discussion about stopping Eprex when I started Vidaza but it was decided to stay the course and my Hemaglobin has stayed about the same level. I have personally suffered no side effects from Eprex. With Vidaza my Platelets have moved to normal range on a few occasions and WBC gone up but still much lower than normal. Have never required a transfusion to date.

January 2, 2019 at 4:32 am #44809

David Williams
Participant

Hi! I’m new here. I was diagnosed with 5q minus syndrome 5 years ago. EPO worked great for me. But I read that the effects wear off after a year or so. Instead, I decided to save the epo injections until I have I have fewer choices. Said differently, my red cell count is 2.9 and my hemo is 9.4 and feel really good so I just save my epo until i need it more than I do now.

Anyway, I do lots of medical research and hope that some of what I have discovered will help others.

david
Author

Posts