Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Remission

Tagged: myelodysplasticsyndromeremission

This topic has 4 replies, 3 voices, and was last updated 4 years, 6 months ago by azalin.

Viewing 5 posts - 1 through 5 (of 5 total)

Author

Posts
October 2, 2019 at 10:53 pm #49120
azalin
Participant
Has anyone else gone from transfusions every 4-7 days all blood levels low.fir a 5 month period.. to basically a remissive state? Where all levels increase and blood transfusions stop?Just curious if this is temporary?
- This topic was modified 4 years, 6 months ago by azalin.
October 3, 2019 at 12:02 am #49122

Somenath Mitra
Participant

Yes i have a patient who is blood transfusion free for over 2 years now who needed a BT every 4-7 days. It was a case of failed chemotherapy. Jakavi and Thalix both had failed. A very interesting case study 😊

October 3, 2019 at 12:42 am #49126

azalin
Participant

Can I ask what helped him stabalize? I am very interested.

October 8, 2019 at 6:16 pm #49154

Aureta
Participant

How you keep antibodies low with having that many transfusions?

October 8, 2019 at 7:32 pm #49155

azalin
Participant

Today we are 26 days transfusion free. We started essential oils and complete diet change. Some supplements… smoothie every morning made with Greek yogurt, flax seed, almond milk, frozen organic dark berries, apples, pears, avacodo, kale, chia seeds, papaya (for platelets) a different combo every day. We juice every evening carrots, celery, apples, pear. He has eliminated most processed sugars.
Author

Posts