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Heart pounding

Tagged: Blumoonlit

This topic has 8 replies, 3 voices, and was last updated 2 years, 10 months ago by Belinda.

Viewing 9 posts - 1 through 9 (of 9 total)

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September 30, 2020 at 5:59 pm #53015

Mary Piel
Participant

I was diagnosed with low risk MDS in the Fall 2019. Counts are pretty steady with Hgb 9, plts 60, wbc 1.3. I feel fatigued and will be started on Epo. But what is driving me crazy is that I feel and hear my heart beat almost constantly. I am guessing this is due to anemia. Anyone else have this condition?

October 1, 2020 at 5:19 am #53081

Kathy Stermer
Participant

I get this frequently when my hgb gets low and is a sign from my body I’m reaching a point of needing blood. After living with this for a few years, my body has adapted to being low and gets more pronounced when my hgb gets in the low 7’s. The “whooshing” sound used to drive me crazy and was a constant reminder to me that I had this nasty disease but now is most pronounced at the end of the day when I’m fatigued.

October 2, 2020 at 11:57 am #53099

Mary Piel
Participant

Thank you so much, Kathy, this makes me feel better. I am still in the beginning of coming to grips with this condition. It all makes me anxious.

October 2, 2020 at 1:18 pm #53100

Kathy Stermer
Participant

Mary, I would be happy to speak with you anytime as a fellow patient.
If interested email me
ksterme58@hotmail.com and I’ll give you my phone #

October 3, 2020 at 6:05 pm #53102

Belinda
Participant

Mary, every time I have low Hemoglobin, hematocrit and red blood cells my heart will pound so loud that I have a hard time hearing anything else.
I’m usually very fatigued and short of breath at that point as well. I know by all those symptoms that it’s time for a blood transfusion. I’ll go to office for labs and end up going to hospital for two units of blood.
So please let your doctor know of your symptoms. I too, will answer any of your questions, if I know the answers.
Belinda

October 3, 2020 at 7:56 pm #53103

Mary Piel
Participant

Dear Belinda, Thank you so much. I cannot tell you how much that helps me. I feel lik e I am waiting for my heart to stop. My Epo was approved and I go in on Monday for my first shot. I am keeping my fingers crossed that it will help. I hope you are feeling well today, Mary

October 3, 2020 at 11:41 pm #53104

Belinda
Participant

Mary, you are most welcome.
I’ve been dealing with diagnosis since July 2019. They gave me 1 yr 6 months to live. I’m still fighting. I take Vidaza for 7 days every 4 weeks and Aranesp injection every 3 weeks. In between, I’m getting labs, see the doctor, then right before it’s time for Vidaza again, I end up getting 2 units of blood. Then it starts all over again. I’m hoping, and by the Grace of God, I’m here longer than a year and half. Already past a year, so we will see.

October 4, 2020 at 4:11 pm #53109

Mary Piel
Participant

Belinda, i am so sorry. I am assuming you are ” high risk”. I was diagnosed last Fall. Why dont they give you a bone marrow transplant?

June 11, 2021 at 1:52 pm #54632

Belinda
Participant

I am not eligible for a transplant. I have COPD.
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