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Allogeneic BMT or MUD

This topic has 4 replies, 1 voice, and was last updated 15 years, 9 months ago by jga_socal.

Viewing 5 posts - 1 through 5 (of 5 total)

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July 15, 2008 at 5:11 am #21040

Kiwi Ken
Member

I am looking at the option of having an Unrelated BMT or MUD as none of my siblings are compatible for a BMT
As I am BT dependant,(every 12 days) and RAEB-1, I was wondering what my long term prognosis would be and if any of you good folks have had real success and enjoyed good health as a result of a MUD.
Kind regards
Ken

July 16, 2008 at 1:52 am #21041

MNladyslipper
Member

Ken, There are a lot of people who have had success with transplants. What are your blasts? Where are you thinking of going for the transplant?
Check out the following site – under transplants. They seem to get a little more action on this site because it is broader, not just MDS.
http://www.leukemia-lymphoma.org/ubb.adp?frame_url=http://ubb-lls.leukemia-lymphoma.org/cgi-bin/ubbcgi/Ultimate.cgi?action=intro&item_id=9388
Good Luck!
Bev

July 17, 2008 at 6:51 am #21042

Kiwi Ken
Member

Hi Bev, thanks for quick reply and the leukemia web site
My blasts are 7% and have not changed in two years, however I am due for another BMB soon.
All going well will have the the transplant in New Zealand.
Thanks once again
Ken

July 31, 2008 at 5:18 pm #21043

Sister
Member

Go to http://www.marrow.org. In Patients/familty section, there ar tons of information on tranplant centers and their expereinces, and success rates.
Good luck.

Sister

August 5, 2008 at 5:27 pm #21044

jga_socal
Member

My favorite website for finding stories from others going thru chemo, stem cell transplants, etc.. is thejournalofaprizefighter.com . On the left side is a section ‘Fellow Prize Fighters’.
I had a mud sct Jan 9 and, so far, knock on wood, fingers crossed, doing really well so far. If you are in otherwise good physical and mental health it’s worth a shot if you are under 60 years old.
Back to the website mentioned above, Duane is 1 year out of mud xplant and is still experiencing some annoying GVHD. It’s a tough and unpredictable road, but it *is* the only road out of bone-marrow-failure town.
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