MDS is a bone marrow failure disorder
MDS is a blood cancer
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Blast

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  • #44734
    Lisa Goodin
    Participant

    Question. My mom was diagnosed in 2017 with RAEB1. She has decided to not treat. Yesterday at her doctor’s appt. her blast from the blood test showed 33%. This is up from 7% in November. Yet all of her blood counts are going up. HCT is 33.1%, HBG is 9.8, WBC is 3.1, ANC is .6 and platelet count is 45,000. I have decided that there really is no tracking this type of cancer. My question is, is there a difference between blast in the blood and blast in the bone marrow? I think I read if the blast are over 20 then it is considered AML but with all of her counts going up I am just not sure what to think. Can someone explain? Thanks

    #44779
    mdsfound
    Moderator

    Hi Lisa, Thank you for your post with information regarding your mother’s health. When you have 19% blasts you have MDS. When it reaches 20% it is Acute Myeloid Leukemia. I know this is a difficult situation for you and I would recommend that you take her to one of our Centers of Excellence in MDS for a second opinion. There are many drugs in the pipeline for those who have AML. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. If we can be of any further assistance, please email patientliaison@mds-foundation.org. I hope this helps.

    • This reply was modified 5 years, 4 months ago by mdsfound.
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