BMT questions

[amy a]

Hi – my name is Amy. I am new to the forum. My dad was diagnosed in Sept. with MDS, raeb-2. He is facing a bone marrow transplant in January. Our family is full of questions and want to know what to expect. We would love to hear from others who have had a transplant.

[DonUK]

Hello Amya, I can talk you through my experience of my partner having one. Sadly, we didn’t get the right outcome.

Is your dad’s transplant a mini or full blown ? Allogenic or autogenic?

There are some people on the board who have had successful transplants.

There is a lady (I’m sure she wouldn’t mind me mentioning her name for these purposes) called Ruth Cuadra who has a few web pages telling her own story. If you search on her name, you will find it.

take care,
Don

[amy a]

Don – thank you for responding. I read Ruth’s story, it was informative. I will share it with dad. His transplant is allogenic and a related donor (his brother). I am fairly sure it is a full blown transplant. There hasn’t been any talk of a “mini transplant”. I am sorry to hear about Karen. It is very kind of you to continue to share your story through the forum. I am hoping to hear from others who have transplant stories to share as well. Thank you again — Amy

[SimonChai]

Hi, Amya: I’m leaving for Seattle for a transplant on Monday so I can’t tell you my story yet, but I have found BMT-Talk helpful. Do you know the listserve?

Bone Marrow Transplant list (BMT-Talk)

E-mail list for those who have had or are facing Bone Marrow Transplants (BMT) or Peripheral Stem Cell Transplants (PSCT or PSCR). To subscribe:

   
e-mail:
listserv@listserv.acor.org

   
subject:
none (or add a dash if your mail program requires it)

   
message:
subscribe bmt-talk your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the BMT-TALK list.

[Author]

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