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Bumps under his skin and open sore

This topic has 4 replies, 1 voice, and was last updated 17 years, 8 months ago by KWJ.

Viewing 5 posts - 1 through 5 (of 5 total)

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August 17, 2006 at 7:30 am #14476

Kathy7964
Member

My Dad just completed his first treatment of Dacogen. After two weeks of getting the Dacogen he developed this sore on his upper thigh and red lumps on his legs and arms. The sore is very painful. His doctor said he doesn’t know what this sore is and he is in the hospital with high fever. Can someone please let me know if this is possibly from the Dacogen?
Thanks

August 17, 2006 at 4:23 pm #14477

maueenh
Participant

Kathy,

My dad has been on Vidaza (for 3 months) and does experience a rash where he receives his injections. He said it’s sore but not very painful. After his first treatment his blood counts fell (which is expected)and he had to receive a tx of both reds and platelets. When counts fall you have to be very careful of infection.

Maureen

August 18, 2006 at 6:16 am #14478

KWJ
Member

Ask the doctor about Sweets Syndrome. My dad got it after 2 doses of vidaza. Took them almost 7 days to figure out what it was. He got so sick, but once they figured out what it was they treated him with predisone. he got better and now is on dacogen. Waiting on BMB results now.

good luck.

August 19, 2006 at 12:16 am #14479

Kathy7964
Member

Thank you for the info. He has been in the hospital since Tuesday morning. The doctors are saying they do not know what this sore/rash is. They are giving him transfusions and four different types of antibiotics. Last night his fever reach 104 and he became delirious. We were so scared and the did a cat scan asap and the results were negative. They did a biopsy yesterday of the sore and we found out today it was lost so they had to do another biopsy. And the lumps have become a purple color and very painful. I spent all night with him with the chills and it’s just so hard to see him this way. He is slipping in the delirum again today since his fever is 103.5. They did mention something about this sweets syndrome.

Thank you so much for taking the time to respond.

August 22, 2006 at 5:30 am #14480

KWJ
Member

Sounds like what happened with my dad, he was totally out of it…they finally figured it out and put him on predisone, it got better…I hope they figure it out soon. I bet it is sweets.
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