Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

diet/supplements

Tagged: diet/supplements

This topic has 3 replies, 4 voices, and was last updated 7 years, 4 months ago by tam.

Viewing 4 posts - 1 through 4 (of 4 total)

Author

Posts
February 23, 2016 at 5:06 pm #29276

robert rogus
Participant

My husband currently has low platelet count and is diagnosed with MDS. Has anyone had improvement with either any particular foods or supplements of any kind (vitamins or herbs)

February 25, 2016 at 3:46 pm #29377
Anonymous
Inactive
Hi Robert, For foods to boost platelets see page 27 of the MDS News here https://mds-foundation.org/wp-content/uploads/manual/2015fallnewsletter.pdf. And don’t forget to discuss over-the-counter and prescription drugs, dietary supplements, vitamins, minerals, herbals, foods and diets that you are considering taking with your healthcare providers. Ask your doctor or pharmacist for the package insert for each drug you take. Ask your doctor or pharmacist about drug reactions and interactions to foods, beverages and other products. I hope this helps.
- This reply was modified 8 years, 2 months ago by .
February 28, 2016 at 5:26 pm #29382

Richard Mousigian
Participant

I’ve had a real protein craving the last couple of weeks since I started chemo. When I eat it’s usually eggs, cheese, nuts…at least I’m craving the right thing.

December 9, 2016 at 3:32 pm #31305

tam
Participant

Robert,
I was diagnosed with MDS over three years ago. One of my symptoms was a low platelet count. At the time I found research that suggested papaya leaves tea increases platelet counts. I found an online retailer Starwest Botanicals that sells organic papaya leaves with directions on how to prepare the tea. It is very simple. One tablespoon of leaves in a tea bag in boiling water for five minutes. I’ve been drinking the tea every night since being diagnosed. I noticed a slight gain in platelets in the first couple months. I have been able to hold my platelet count around 115-120 for the last three years. Clearly there are no grounds to conclude a cause-effect relationship because I changed other things in my life related to diet and exercise. Plus I’m a sample of one. However, there are no negative impacts on my health and my counts are holding steady so I’ll continue my nightly papaya tea ritual.
tam
Author

Posts