Different advise

[dlittle53]

I have a video appointment quarterly and see my doctor at a Center of Excelence once a year. He makes suggetions to my local doctor. The local doctor ignores his suggestions for changing amounts of my prescriptions. My local doctor has scheduled another bone marrow without talking to the doctor at the Mayo Clinic where I had one in June. I am confused as to how to handle this conflicting info.

[Ashley Moncrief]

Hello,

Thanks for writing in! My name is Ashley and I serve as the Director of Patient Care for the foundation. This is a really hard place to be in. Ideally, it should work as a partnership.

You should always feel comfortable with your treatment plan. In fact, you need to be a partner in it. As hard as it will be, I think it is worth asking each physician why they recommend what they do so you can understand where they are coming from. You always have the option of changing doctors if you feel the relationship between your Center of Excellence and local doctor is beyond repair.

Again, I’m so sorry to hear you’ve been put in the middle. If you would like to send me an email at amoncrief@mds-foundation.org or give me a call at 1-800-637-0839 ext. 210, I can certainly try to help you navigate this.

Ashley

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