Disease Update

[Michael]

After a 7+ year run of watch and wait low risk MDS, my luck ran out and I started Vidaza in late August. First two cycles gave some promising results but after third cycle blood work tanked. I had a bone marrow biopsy which confirmed acute myeloid leukemia. I am 71 yrs old, and mulling transplant but not leaning that way. I enter Columbia University Medical Center (NYC) on 11/28 to begin treatment. The plan is to get blasts below 5% with induction and then begin consolidation. I’ll be an inpatient at Columbia for one month, hopefully followed with outpatient treatment locally, # I live 3 hours from NYC.

Be well folks.

[Ashley Moncrief]

Hi Michael,

Thank you for writing in. We will keep you in our thoughts. Please let us know if there is anything we can do to help.

Ashley

[debbie stern]

Michael,
Can you please share what the plan is if you don’t do transplant. I am 73 and on a micro dose Decitabine protocol that has been keeping me stable for 4 and 1/2 years but my platelets are starting to fall.
I also probably won’t do a transplant and am wondering what else your team is offering you after the month in the hospital. Feel free to email me privately at deblevstern@gmail.com. Thank you and best of luck!

[Sylvia Rothbein]

Michael..
Hi Michael..my 76 yo husband has high risk mds since May 2923 and has had 3 cycles of azacitadine and venetoclax. He is being evaluated for a transplant because the doctors at memorial sloan kettering told us that the chemo will stop working in about a year.
We were excited about the transplant
Until we spoke to a 85 yo high risk mds patient who has been on chemo for 8 years…dr raza at Columbia Presbyterian is anti transplant…we r sooo confused now cause a transplant is very high risk but my husband thought it was worth the risk since he will die in less than 2 years wo it.

[Author]

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