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MDS is a blood cancer
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Doctor says I'm killing my dad

Home Demo forums Patient Message Board Doctor says I'm killing my dad

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  • #19194
    JSRN
    Member

    Mom has been receiving blood transfusions for over 8 years. She now gets them every 2-3 weeks. Stretching it out to 4 weeks causes chest pain and too much fatigue. She does have high ferritin levels. Which her new oncologist wants her to take Ex-Jade. (Oncologist of many years retired). We are against this due to the cost and the numerous side effects. She took vidaza and it about killed her. Right now she is doing well. Does not have too much fatigue and her other counts are good. Sometimes one has to put their foot down and do what is best for them. Not what the doctors want you to do.
    This doctor is an @ss! I hope something came of your reporting him. His conduct was unacceptable.

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