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EPO Test result

This topic has 2 replies, 1 voice, and was last updated 18 years, 3 months ago by bobbie.

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January 12, 2006 at 7:20 pm #11307

magpie75
Member

I see my Doctor ran a test for Erythropoietin and the result # was 490.0 mIU/mL. He noted this was the level before starting Procrit. I think that means it is really high. Can anyone confirm this to me.
I also think this indicates that Procrit will not work as I already have an abundance of EPO in me. I got the report from the Dr’s office to take with me to Johns Hopkins. But have not seen my local Doc for several weeks, have just been getting Procrit shots from the nurse.
Thanks for your input.
Maggie

January 12, 2006 at 7:50 pm #11308

patti
Member

Maggie,

I’m can’t confirm that your EPO level is high but if that’s what it was prior to starting procrit and the procrit isn’t working than you are correct that it probably means your body has enough EPO already. Procrit did not work for my MIL as well for the same reason. Check the test next to the EPO level is there an L, H or nothing? If there’s nothing I would think it means you were in the normal range (they may even have the range for you on the paper – I know ours does). If there’s an H it would mean it’s high and the L would be low. It does somewhat depend on the lab but every test we’ve ever had done has had these indicators on it.

Best wishes,

patti

January 15, 2006 at 3:02 am #11309

bobbie
Member

Hi,

The Hutchinson Center in Seattle ran an EPO level on me and told me I would benefit. But, I didn’t because I ended up not having sufficient iron. I have bleeding ulcers (chronic vasculitis) and unless I get an iron infusion (Iron Dextran) my anemia doesn’t respond to Procrit or Aranesp. However, after IV iron, I can get a response for a bit. My diagnosis is secondary aplastic anemia and MDS-RA.

Best of luck!
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