Exercise

[Jerry]

Do any of you know whether the Dr’s feel that exercise is good for an MDS patient. I feel that the axiom of “any exercise is good exercise” is probably true, but I am not sure in this case. I have a treadmill and currently have the energy to walk. What do you think? Thank you.

[frank]

i took 1 mile walk every day…
should be fine if you can do some exercise…

Frank

[Suzanne]

Yes they told me that exercise, eating sensibly and getting plenty of sleep was important. I walked in the hall in the hospital when I was there. Then three miles outside almost every day and an hour of jazzercise three times a week. I think it has helped. Don’t push yourself too hard. Do what is comfortable.

[Neil]

Hi Jerry,
I get all the exercise I can tolerate.
Follow a low fat low carb diet and take a multi vitamin, Vitamin C and Vatamin B6.
Frequently discuss my routine with my doc and he endorses ot at this time.
There are many variations of MDS between patients. Suspect those with a higher risk level might want to use caution with exercise.
I am pro active with dental care. Get my teeth cleaned every 3-4 months and brush 3-4 times a day and floss at least once. Gum problems can develop with MDS patients. I want to stay ahead of the game while I can.
Would kick it around with your hemo and see what he/ she feels.

[lindajo]

At convention last year every doctor recommended an exercise plan and a nutritionist. They just didn’t want the liability of recommendations since it wasn’t theire area of expertise.

I use water aquasize since it keeps any of my muscles from taking impact and limited weights on machines at the local YMCA. During cold and flu season I do yoga exercises at home to avoid and limit exposure to sick people.

[Jerry]

Thank you all … I guess I feel so feisty today because my hemoglobin was up to 12 !!!! That is the highest is has been in a long time. Neil, thanks for the dental advice … I do it all pretty religiously except for the flossing part. Gonna have to work on that. I am still trying to figure out how to find a competant nutritionist. I am a bit afraid of finding someone who has no clue as to what I need. Hope you all have a great week.

[Jimbob]

I had a little physical therapy just after SCT while in the hospital. I wish I had kept it up. Instead my muscles atrophied, I lost whatever endurance I had and became easily and thoroughly fatigued. Also, I had increased pain in hands and feet. Last year I started with physical therapy and have increased it to monitored 2 times a week and 3 – 4 times at home. I have full use of my hands and my fight only hurt a little. I wole heartedly endorse a regular exercise program as an important part of your health care. Proper nutrition and supplements under the direction of a nutritionist or certified dieticain who has worked successfully with cancer, MDS, and/or leukemia patients should be another part. And developing a support group to help you and your family is another. There is probably more that I should list but family calls. I wish that the care centers would stress these things along with the standard medical practices.
Jim

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