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Exjade and liver problems

This topic has 2 replies, 1 voice, and was last updated 17 years, 4 months ago by patti.

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January 9, 2007 at 11:32 am #16689

helenr
Member

Hello everyone

We thought things were improving. David began Exjade a month ago. After infusing desferal for over a year he was enjoying being able to sleep without his friendly infusion pump. He had none of the common side-effects and we were really happy but recent blood tests have shown liver inflammation. Our local Dr muttered something about drug induced hepatitis. OurMDS Dr is away this week.

Has anyone else had a similar reaction? The published side-effects list raised liver enzymes. David’s are ten times normal which I think is serious.

A friend sent this message which I thought I might share.

2007 will bring joy and sorrow so SMILE.

Best wishes to everyone.

Helen

January 9, 2007 at 3:39 pm #16690

covergirl
Member

Hi Helen,
Sorry to hear about David’s new challenge. If I am not mistaken, liver damage is a side effect of desferal and also of the high ferratin levels.

I hope this can be contained. Hang in there and take one day at a time.
–cheryl

January 9, 2007 at 4:42 pm #16691

patti
Member

Helen,

My MIL has very slight elevated liver enzymes but we were told it was due to the iron overload itself. Her ferritin is around 3300 right now. But exjade has caused other issues for folks (including us)with lower white and red counts so I wouldn’t rule out it could be the exjade. It just sounds more like iron overload damage.

Patti
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