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FINALLY on Revlimid

This topic has 6 replies, 1 voice, and was last updated 18 years, 3 months ago by Naomi.

Viewing 7 posts - 1 through 7 (of 7 total)

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February 3, 2006 at 7:27 pm #11640

Carl
Member

I finally got on Revlimid yesterday and I am so glad the medication is now available for MDS, particularly in my case since I have the 5q- chromosome abnormality. It took a week and a half after the local doc. wrote the precription for me to actually get the drug since it has to come from one of 19 pharmacies in the U.S.

The side effects don’t apprear to be any worse, or possibly even better, than the Thalidomide I was on for so long.

I’ll keep yall updated.

February 3, 2006 at 9:02 pm #11641

Naomi
Member

Hi Carl:
Hope you do as well as I have on the revlimid. I have been on it since Nov 03 and will continue to take it as long as my red counts stay up. The side effects were very minimal compared to thalidomide for me. After a time they just become a part of normal routine.
Good Luck
Naomi

February 3, 2006 at 11:57 pm #11642

sugarwhale
Member

Dear Carl and Naomi,
My mom is in your same boat: She will get the Revlimid in a couple of days, about 2 weeks after the doctor prescribed it. I was glad to read both of your posts. My mom had a lot of side effects with the thalomid. Our wonderful doctor says she’ll do fine on the revlimid. We had a great deal of trouble getting it; it was downright disgraceful. I don’t know what we’d do if we didn’t have our doctor.
Best of luck to both of you!
~~~ Janet

February 13, 2006 at 4:27 pm #11643

andrew
Member

hi there
My mother has been on Thalidomide 25g every other night for 1 year now and here haemoglobin is around 12.8 – she will be able to access Revlimid when it comes out in the UK. How long do people – on average – stay on it?

February 13, 2006 at 5:48 pm #11644

CarolineG
Member

Carl,

Best of luck with the Revlimid. Also, to anyone else who is finally able to get it.

Caroline

February 13, 2006 at 10:39 pm #11645

Naomi
Member

Andrew:
It isn’t known how long. I started Nov 03 and am still taking it. Doc said as long as it keeps my crit up I can stay on it for the rest of my life.
Maybe they are suing me for long term effects.
Naomi

February 15, 2006 at 1:57 am #11646

Naomi
Member

That was supposed to be using . Sorry
Naomi
Author

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