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High Platelets

This topic has 3 replies, 1 voice, and was last updated 15 years, 5 months ago by sgoodman.

Viewing 4 posts - 1 through 4 (of 4 total)

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May 23, 2007 at 7:18 pm #18206

sgoodman
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Has anyone experienced high platelets (over 1 million) with MDS or myelofibrosis? If so, have you had any additional symptoms or conditions that relate to the high platelets? I have been on revlimid (10 mgs) for the past year. Thanks for any information.

November 1, 2008 at 11:22 am #18207

plantcollector
Member

sgoodman, I know this is an old post, but just found it when searching for various topics. Yes, I have had high platelets for 7 years – since diagnosis of MDS (5q-). I have NOT had any symptoms or complications from having elevated platelets. At one time they were 1,800. Sylvia

November 2, 2008 at 3:34 pm #18208

paml
Member

Sgoodman,
Like me, you’ve been around for a while! You probably already know, but the condition of high platelets is called Thrombocytosis. This, like myelofibrosis is a myeloprliferative disorder. From my understanding it is not uncommon for mds patients to crossover with symptoms of both diseases. 4+ years ago at my last bmb I showed signs of both diseases. If you haven’t already, it sounds like you’ll be having a conversation with your doc.
Pam L.

November 10, 2008 at 5:51 pm #18209

sgoodman
Member

Pam,

Thanks for the post. It has been over 7 years since my diagnosis (7/01) and my platelets have declined to normal levels. The doctors think that it was just an anomolie rather than a symptom of thromboctytosis.

Glad you are doing well.
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