John, QQ, anyone else interested
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Hi guys,
I wanted to share some additional info that I found helpful from the Chinese Medicine Man. Mom saw him last night after her transfusion.
One thing I was very interested in was how this course of treatment would go. He said *if* mom responds to the herbs, she should be stabalized in six months. That means her HGB will not go below 8 at the minimum. From there he will continue to increase the intensity of her herbs until she climbs into the normal range for her HGB. After she’s in normal range he will add more intense herbs for her white cells. He said it will take about 2-4 months for whites to go normal. Once they are normal and her platelets are at 60K (which he said will climb slowly this whole time) he will add intense herbs for her platelets. He said it will take an additional 2-4 months for platelets to be normal. He said bone marrow function should be restored anywhere from 1-2 yrs. of total treatment.
I found it helpful to have that time frame because if it were me I would have waited two or three months and figured it wasn’t working and bagged the whole thing. He said that over this first six months she will still need transfusions but they should start getting further and further apart. Hey, I was happy we got three weeks out of the last!
One thing that was very noticeable to us yesterday was although mom needed blood her hemogl. was not near as low as it should have been for how low her hematocrit was. Her hemato. was 24 but her hemog. was 7.8. Normally when her hemato is that low her hgb is in the 6’s. So to me, that is a small improvement. Mr. Medicine Man was thrilled to see it wasn’t as low as normal because he was looking at previous numbers and could see that she should have had a much lower hbg for that hemato.
Yesterday he added Sea Cucumber to mom’s diet. Oh, man, don’t ask me! Believe it or not my daughter had a picture of it in her science book! So off to the chinese store to buy it. QQ I bet you’re very familiar with that. It is a uniquely Chinese thing to eat.
He says it tastes like chicken, does it? Actually, he says it melts in soup but gives it a “chickeny” sort of flavor. I have to throw this in for good measure because we are not out of the woods by any means. I believe that if we had found a naturapath in the very beginning when we wanted to go natural and not flown by the seat of our pants (our doctor wouldn’t give us any direction that way) that mom may have truly had a chance at this stuff working 100%. However, in light of the fact that it was 14 months before we went to a naturapath and 18mos before we saw this guy, I am not sure mom’s body will survive. She is having other health problems that may end up being her end and not the MDS. But only God knows and I will take everyday God gives us and be so thankful. She feels well, not sick and that means so much.
I guess I said that, QQ, to say I hope you’re sister doesn’t wait too long to involve a naturapath. Even if she’s going to do conventional medicine. Too much damage gets done before the body gets strengthened and it can be too late.
I am still very very hopeful but I am also trying to be a realist.
John, one thing I found out is if you go to a chinese medicine man (or woman), make sure they are chinese!! A western person will not do. I know that sounds funny but like this doc explained, these people live their whole lives under chinese medicine and really understand it in a way no one else can.
Hope this info helps.
patti
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