Just diagnosed with MDS (still young)

[Jack L]

Hi Pamela,

As most of the previous posts have suggested, getting a knowledgable hemo/onco doctor is very important. More and more information is coming out about new ways to tackle MDS, depending on your situation.
I am now 37 years old but was diagnosed at 33. MDS was actually a secondary disease to me as it spawned from SAA (severe aplastic anemia).
I underwent an unrelated mismatched BMT in September 2004. I did have a few complications and battles but in the bigger picture, minor to what others have been through. I am 2+ years post now and have not had a transfusion since October 2004.
I have to credit the core group of doctors I had for helping me understand my options and being very knowledgable with my disease. I was treated at the Fred Hutchinson Cancer Research Center in Seattle, WA.
I have too much information floating around in my head to blurb about here. If you would like to pick my brain please feel free to email me.
Best Wishes.

[Author]

Posts