Hi Mary,
I guess what I meant by recovering from my transplant is that the road to wellness is a process and that it’s not a straight line to the finish; or at least it hasn’t been for me. I was re-hospitalized for 17 days after my initial transplant release due to GVHD and CMV. After that event and subsequent immunosuppressive taper I was good for about two weeks before I was back in clinic with a head to toe body itch; GVH of the skin again. I’m currently on 20mgs of Prednisone down from 160mgs (no 160 isn’t a typo). I was re-hospitalized one other time for two nights for an infection; I responded well to antibiotics.
I get very tired so I pick and choose what I’m up for in day or evening. While out in public I still wear a mask because of my suppressed immune system. I have neuropathy in my feet and finger tips from the 22 doses of chemo that I’ve had. I’m sure there’s more but in the scheme of things I tell people I’m just happy to be walking in the green grass. Please know that none of the above is complaining it’s just a description. I feel very blessed for experiencing this level of healing. It was this time last year that I found out that my MDS was transforming and in all probability had already moved to AML.
I have read your posts on the forum and am very happy that Mike is recovering well from his transplant. I’ve kept a journal on CaringBridge if you’d like to take a look at my journey; the link is as follows,
http://www.caringbridge.org/visit/pamlalumiere/journal
I’m happy to share anything about my experience, feel free to ask. Wishing you a very Merry Christmas, Happy Holiday, and a Happy, healthy New Year.
Best Regards,
Pam (Day +273)
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