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MDS EXPLANATION

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  • #10344
    hope&faith
    Member

    My father said he has raeb with 12% blasts, can anyone help explain… Thanks

    #10345
    Chiparoo
    Member

    Hope&Faith,

    RAEB is “Refractory Anemia with Excessive (or increased) Blasts.” The percentage figure is for the amount of blasts. Blasts are leukemia-like cells. There are 2 categories, RAEB-1, 6% to 10% blasts, and RAEB-2, 11% to 20% blasts. Looks like your dad has category 2. People that have marrow that contains more than 30% blasts have acute myeloid leukemia (AML). Beyond that, is CML, chronic myelomonocytic leukemia. I have what your dad has, have found a donor, and am awaiting stem cell replacement.

    The MDS Foundation has wonderful information. Take advantage of it. And don’t be afraid to ask your dad’s oncologist questions.
    Information is truly power! I wish the best to your dad, you, and your family in your path toward healing. Keep the faith!

    Chip
    ——————–
    48, Dx w/ RARS April 03. Long arm of chromosome #20 missing. Unsuccessful month w/Thalidomide Jan 04. Dx w/RAEB Aug 05. 2 rounds of Vidaza. Procrit and Neulasta as needed. Vidaza stopped 11/05 – no sign of improvement. Regular transfusions. Found bone marrow match and donor. Waiting for transplant date.

    #10346
    Suzanne
    Member

    I had that category also and have found some success so far without haveing a transplant so don’t let the life expectancy statitics totally freak you out. Find good doctors at a center of excellence. Good luck.

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