MDS on transfusion

[Subra Pillai]

Hi,

My dad who is 78 got disgnosed with MDS on December 2018. The Bone marrow biopsy indicated mild fibrosis and a few osteoclasts.The impression was hypocellular marrow with significant reduction in haemopoietic elements and focal fibrosis. Since then his Hemoglobin has been going down. Considering his age the doctor recommended erythropoietin injections of 3 per week for 3 months. Since then he has been on blood transfusion whenever Hemoglobin does down . Since December he has taken around 10 units of blood transfusion. His appetite appears to be fine however this week his platelets went down and had to go through platelet transfusion. Please advise if he could continue with the its supportive therapy of blood transfusions and erythropoietin.

Thanks,
Subra.

[mdsfound]

Dear Subra, I know this is a difficult situation for you and I would recommend that you take your father to one of our Centers of Excellence in MDS for a second opinion. He should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment.
Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. In the meantime, you can also view this video https://www.mds-foundation.org/bboh/. I hope this information helps.

[Author]

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