MDS secondary to non hodgkins lymphoma progress to MDS (RARS) to AML

[Susan C]

Is there any one on this forum that fits this criteria. I was told that this is the most critical type of Leukemia. I need to hear some positive feed back from those who fit this criteria. Suzanne was very encouraging, yet I’m not positive that the criteria is the same. I have little time to do research since I’m at the hospital 19 hours per day.

Thank you.

Susan aka Britt

[pierre]

Susan–

Not an exact fit, since my mother has (had, we hope) MDS secondary to breast cancer, but it also progressed to AML.

She’s now a few weeks post stem-cell transplant and doing well.

MDS/AML is indeed critical, doubly so when the MDS is secondary to another cancer. But anything is possible. Don’t give up.

[Jim]

Pierre,
If I may ask, how old is your Mom??

JW

[lbeachbum2]

I also have intermediate 2 MDS caused by 2 treatments of Hodgkins with a stem cell transplant in 2002 …. 3 months they told me something went wrong and now Im facing tring to get into remission ,,, then triple Bypass surgery , and then a Stem cell transplant with a 3rd party …any info you might get please pass to me too …Im a 48 year old male on Long Island and Im now on Decitabine Chemo …I got no reaction from Revlild…Mike

[pierre]

Jim–69.

[Author]

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