MDS

[Maria Conroy]

I have a question to the public or any doctor out there that would dignify an answer. My brother-in-law is experiencing a drop in platelets, about 30,000 and the white blood count is 2.5, and the bone marrow biopsies have come back negative for any cancer. Ct scan of the spleen is normal and they cannot figure out what is wrong, so therefore have offered no treatment. What should we do and can you offer what should be the next course of action besides a third bone marrow biopsy? Should we seek a second opinion from another Hematologist oncologist or is it really a waiting game till some other symptom appears. So far he is a-symptomatic except for tiredness, but nothing unusual. he never gets sick and says he feels fine! Help!

[mdsfound]

Hi Maria, Thank you for your post. I would recommend that you take your brother-in-law to one of our Centers of Excellence in MDS for a second opinion just to make sure he is not being undertreated. He should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact us at 1-800-637-0839.

• This reply was modified 8 years, 6 months ago by mdsfound.

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