Julie Marie,
I did have some experience with a doctor and a NP at OSU 3 years ago when my son had AML. Thinking back, I was not very happy with the way his case was handled. My son had relapsed after a stem cell transplant and he had been treated at University Hospital’s Ireland Cancer Center. They suggested OSU because of a clinical trial. We went a few times, got our hopes up, but Jason’s liver function tests apparently weren’t up to their standards, according to the NP. However, after it was too late for Jason, she called and said that it would be okay to go ahead with the trial. Meanwhile, weeks had gone by with not much communication from anybody there. My son passed about a month after the ordeal with OSU. I was not happy with the way they handled the screening process and not keeping us informed.
I am now being treated at the Cleveland Clinic for CMML, after being given the runaround at University and them not doing anything to help my quality of life. The doctor who is treating me is Dr. Sekeres and his NP is absolutely wonderful! I’m in the second week of a clinical trial and everyone at the Clinic treats me with compassion and respect – and the communication is fantastic! I can’t say enough good things about the staff at the Clinic.
Much Hope to you,
Cheryl
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